Sunday, October 21, 2012

Join the Social Media Dysautonomia Directory!

Hey folks!  Wondering where all those people are online that have dysautonomia? It can feel pretty lonely having a weird condition that no one has heard of, but supposedly a bunch of people actually have! We just have to find each other!

We created a directory you can register for, and include your various social media contact names and handles. You can include as much or as little as you like. We are dividing it up based on location. There will be a page in the new website devoted to this directory.

One of the goals of Dysautonomia SOS (and this blog) is to connect people, so they can share local resources and support. The online community can be a great resource for finding others.

To register, you can click THIS LINK, or fill out the form below:

Subscribe to our Social Media Dysautonomia Directory:

Welcome to the Social Media Dysautonomia Directory! Provide as much or as little info as you like, and find others online that deal with dysautonomia. We will not send emails or contact you with the info provided, this directory serves as a way to connect with people and find support online. As always, be careful to only list info you are comfortable having displayed publicly, and we are not responsible for any interaction on social media taking place. You can remove yourself from the directory anytime.


* indicates required


The Dysautonomia SOS website will be up and running in the next week! Blog posts will resume after that, I have been spending all my time/energy on the nonprofit website, but STOP POTS will remain active and full of the opinions I can't share on an official organization website. 

Oh, and the TWEET-A-THON is next weekend! DINET is on board as well, we are very excited to get #dysautonomia trending on Twitter! Here is a flier you can share where ever you want:


Love to you all, and thank you for the continued support!


No comments:

Post a Comment