Well, only a few days are left in the first ever Dysautonomia Awareness Month! There is still a lot going on, we will end the month with a bang. Here is a quick break down of 2 cool remaining events.
Friday, October 26, 2012
Sunday, October 21, 2012
Join the Social Media Dysautonomia Directory!
Hey folks! Wondering where all those people are online that have dysautonomia? It can feel pretty lonely having a weird condition that no one has heard
of, but supposedly a bunch of people actually have! We just have to
find each other!
We created a directory you can register for, and include your various social media contact names and handles. You can include as much or as little as you like. We are dividing it up based on location. There will be a page in the new website devoted to this directory.
One of the goals of Dysautonomia SOS (and this blog) is to connect people, so they can share local resources and support. The online community can be a great resource for finding others.
To register, you can click THIS LINK, or fill out the form below:
_______________________________________________________
The Dysautonomia SOS website will be up and running in the next week! Blog posts will resume after that, I have been spending all my time/energy on the nonprofit website, but STOP POTS will remain active and full of the opinions I can't share on an official organization website.
Oh, and the TWEET-A-THON is next weekend! DINET is on board as well, we are very excited to get #dysautonomia trending on Twitter! Here is a flier you can share where ever you want:
Love to you all, and thank you for the continued support!
Claire
We created a directory you can register for, and include your various social media contact names and handles. You can include as much or as little as you like. We are dividing it up based on location. There will be a page in the new website devoted to this directory.
One of the goals of Dysautonomia SOS (and this blog) is to connect people, so they can share local resources and support. The online community can be a great resource for finding others.
To register, you can click THIS LINK, or fill out the form below:
The Dysautonomia SOS website will be up and running in the next week! Blog posts will resume after that, I have been spending all my time/energy on the nonprofit website, but STOP POTS will remain active and full of the opinions I can't share on an official organization website.
Oh, and the TWEET-A-THON is next weekend! DINET is on board as well, we are very excited to get #dysautonomia trending on Twitter! Here is a flier you can share where ever you want:
Love to you all, and thank you for the continued support!
Claire
Subscribe to:
Posts (Atom)