Why, hello there! It's only been 4 years since I last checked in!  I've been hiding for a bit during this healing journey I'...

As I posted earlier, after 11 years of being sick, 3+ of those REALLY sick, like non functional I-can't-take-care-of-my-kids-or-leave-...

This is going to be a long one, just warning you. It only took 11 years, but we have finally found what is most likely causing my POTS....

In case you hadn't heard - it's unofficially Dysautonomia Awareness Month in October - which is this week! Here are a few links and ...

First trip out in the new power chair. I wrote this a little over a year ago and nothing has changed in my opinion of ditching the t...

Peace out homies (for a bit) As you may have noticed, have not been posting here much. This has never been a narative blog, I've tri...

I have not written a post in a long time, since we have been furiously working on the Dysautonomia SOS website.   I also have been doing a f...

YAY! The Dysautonomia SOS site is up and running.   Here are a few sneak peak pictures. I will be back blogging more actively now, looking...

Let’s connect online! Add yourself to our interactive map and find others online and in your area. You can upload pictures, online contact ...

Recently, there was a two part series about POTS that was very well written, and included the stories of the son of one of Dysautonomia SOS...